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Dr Yotova discussing legal regulation of human genome editing with the Cambridge Reproduction SRI

When Oct 18, 2019
from 02:00 PM to 05:00 PM
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On Friday 18 October, Dr Rumiana Yotova will discuss human genome editing as part of a networking event organised by the Cambridge Reproduction SRI. Dr Yotova will offer a legal perspective on the subject as part of an interdisciplinary panel, which will also feature perspectives from sociology and bioscience.

The event will take place on Friday 18 October, from 2-5pm in the Pavillion Room, Hughes Hall College. Networking drinks will follow, until 7pm. The event is open to all. 

More information can be found here.

CeBIL Annual Symposium 2019: Legal Innovation to Support the Development of Antimicrobial Drugs

When Sep 06, 2019
from 08:45 AM to 07:00 PM
Where Christ's College, University of Cambridge
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CeBIL Symposium 2019 Banner

 

Antimicrobial resistance (AMR) continues to expand, raising the risk of a future public health crisis. Numerous conferences have been organised to address the scientific challenges of AMR, such as the need to engineer novel antibiotics. However, science in isolation will not suffice. 

This symposium will explore the complex interactions between law and antimicrobial research and development. Advancing our understanding of this ecosystem will help design a better legal toolkit to promote antimicrobial innovation and limit the impact of resistance on global health.

The CeBIL Symposium is organised by the Cambridge Centre for Law, Medicine and Life Sciences, the Center for Advanced Studies in Biomedical Innovation Law at the University of Copenhagen, and the CeBIL International Collaboration including partners; such as CARB-X, Boston University SIDR, and PORTAL at Harvard Medical School. The Symposium is generously supported by the Novo Nordisk Foundation, the Cambridge Academy for Therapeutic Sciences (CATS), and the Cambridge Infectious Disease Interdisciplinary Research Centre.

Held at the University of Cambridge, an international hub for legal and scientific expertise, we hope the event will mobilise legal, economic, business, medical and scientific experts – early, mid, and late career – who recognise the need to work together to avert the AMR crisis.

Please visit the University e-sales page to register.

If you have any queries about the conference please contact us via email at lml.law.cam.ac.uk.

More information about this event…

Dr Yotova on "Gene Editing and the Rights of Future Generations"

When Jun 10, 2019
from 10:30 AM to 11:15 AM
Where Chateau Vaudreuil, Quebec
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From 9-11 June 2019, Dr Rumiana Yotova  will participate in an international think tank on "Legal Boundaries and the 'Human' in Humanity" at McGill University. 

The think tank is being organized by Professor Bartha Knoppers (McGill) and Professor Hank Greely (Stanford).

It will bring together a diverse group of scholars to examine the future of legal characterisations of the "human" in three domains: the human genome; the human brain; and human cells and body parts.

Dr Yotova will present on the topic of "Gene Editing and the Rights of Future Generations."

Dr Skopek on "Differentiating Eugenics, Enhancements, and Therapies"

When Jun 10, 2019
from 09:00 AM to 09:45 AM
Where Chateau Vaudreuil, Quebec
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From 9-11 June 2019, Dr Jeffrey Skopek (LML Deputy Director) will participate in an international think tank on "Legal Boundaries and the 'Human' in Humanity" at McGill University. 

The think tank is being organized by Professor Bartha Knoppers (McGill) and Professor Hank Greely (Stanford).

It will bring together a diverse group of scholars to examine the future of legal characterisations of the "human" in three domains: the human genome; the human brain; and human cells and body parts.

Dr Skopek will present on "Differentiating Eugenics, Enhancements, and Therapies".

 

Dr Skopek on “What is Privacy? Losses Versus Violations”

When May 10, 2019
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On Thursday 9 and Friday 10 May, Dr Jeffrey Skopek (Deputy Director of LML) participated in a series of events organised by the Leverhulme Centre for the Future of Intelligence.

'The Methodology and Ethics of Targeting' was a public event held on Thursday 9 May. The evening commenced with a lecture by Dr David Stillwell on the use of psychometrics in personalised targeting. Dr Skopek participated in the panel discussion which followed, alongside Professor Dame Theresa Marteau, Dr Nóra Ní Loideáin, and Dr Adrian Weller.

On Friday 10 May, Dr Skopek delivered the talk “What is Privacy? Losses Versus Violations” at a closed, one-day workshop. This workshop discussed the issues raised the during previous evening in greater detail.

More information about this event…

Legal Academic Research and Public Policy

When May 01, 2019
from 10:00 AM to 11:00 AM
Where The Babraham Institute, Cambridge
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On Wednesday May 1st, Dr John Liddicoat (Senior Research Scholar) delivered his talk "Legal Academic Research and Public Policy" at the Babraham Institute.

The talk, aimed at PhD students and early career researchers, discussed how Dr Liddicoat's work had contributed towards public policy; and some of the technical, moral, social, and ethical issues that need to be considered.

Dr Skopek speaks on "The Harms of Human Genetic Enhancement" in Qatar

When Apr 27, 2019
from 09:15 AM to 03:00 PM
Where Weill Cornell Medicine-Qatar
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On Saturday 27 April, Dr Jeffrey Skopek (LML Deputy Director) presented 'The Harms of Human Genetic Enhancement' at the Cornel Medical School campus in Doha, Qatar. 

The talk was part of an event on Genetically Enhanced Humans, which facilitated discussion of the latest genetic technologies (such as CRISPR-Cas9 genome editing) and their potential use in medical practice. It explored what the ethically acceptable uses and limitations of such technologies might be, and considered how future research and practice could align with current legal frameworks.

The event was attended by medical practitioners, allied health professionals, and academics.

More information about this event…

Dr Imogen Goold: Should parents have the final say on the medical treatment of their children?

When Mar 08, 2019
from 05:15 PM to 07:00 PM
Where Faculty of Law, University of Cambridge
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BdL 2019 v2

Abstract

If doctors believe that they might be able to save a dying child, should the parents have the freedom to pursue this treatment? If a court decides that the treatment is not in the child's best interests, should it have unlimited authority to intervene? When deciding what care a child receives, should the wishes of the parents be given any weight? These questions raise complex issues about the boundaries of court power, and how far the state can intervene in what might be considered private, family decisions. They demand we consider the extent to which we give parents the freedom to decide about their children and when this might yield to consideration about the child's welfare. Who knows best? The court? The doctors? The parents? In this talk, Dr Imogen Goold (University of Oxford, Faculty of Law) will explore these and related questions about the scope of parental and judicial power.

About the Speaker

Imogen Goold is Associate Professor in Law at the University of Oxford, and a Fellow of St Anne's College. She studied Law and Modern History at the University of Tasmania, Australia, receiving her PhD in 2005. Her doctoral research explored the use of property law to regulate human body parts. She also received a Masters degree in Bioethics from the University of Monash in 2005. From 1999, she was a research member of the Centre for Law and Genetics, where she published on surrogacy laws, legal constraints on access to infertility treatments and proprietary rights in human tissue. In 2002, she took up as position as a Legal Officer at the Australian Law Reform Commission, working on the inquiries into Genetic Information Privacy and Gene Patenting. After leaving the ALRC in 2004, she worked briefly at the World Health Organisation, researching the provision of genetic medical services in developing countries. Her research interests include the regulation of IVF, the ownership of human body parts and the impact of artificial intelligence on the law of tort.

Registration

 The event is free, but please register here

Further Details

Time:

The lecture will begin promptly at 5:15pm.  Please arrive in a good time as we expect that the event will be well-attended.  Doors will open at 5:00pm.  The lecture will be followed by Q&A and a drinks reception.

Location:

Room LG17, Faculty of Law, University of Cambridge

Parking and transportation:

There is limited on-site parking (contact lml@law.cam.ac.uk) and some metered on-street parking. The venue is on the route for the Uni 4 bus service, alight at West Road, CB3 (further information here).

Questions and more information:

For more information about the Center for Law, Medicine and Life Sciences, as well as the Baron de Lancey Lectures, click here.  For questions, please email us: lml@law.cam.ac.uk

 

This event is kindly sponsored by the Ver Heyden de Lancey Fund, and organised by the Centre for Law, Medicine and Life Sciences.

Global Harmonisation of Data for Health Research: pipe dream or possible?

When Nov 30, 2018
from 12:30 PM to 02:00 PM
Where Moot Court Room, Faculty of Law
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On Friday 30 November, Prof. Bartha Knoppers will present highlights from from a special issue of Human Genetics on international Genomic Data Sharing (published in August 2018). The special issue on Genomic Data Sharing points to the great potential for genomic data in revolutionising healthcare.  Prof. Knoppers will reflect on whether harmonisation is an impossible dream, drawing on data from seven jurisdictions about the governance of international data linkage.

An alumnus of Trinity College, University of Cambridge, Prof. Knoppers is an international authority on the legal and ethical issues surrounding genomic technology. A list of Professor Knoppers’ publications can be found here. Amongst other distinctions, she is the Director of the Centre of Genomics and Policy, McGill University; the Canada Research Chair in Law and Medicine 2001; and the holder of Chaire d’excellence Pierre Fermat (France) (2006-2008).

The talk will take place in the Moot Court Room at the Faculty of Law, from 12.30 - 14.00. Please register here. Registration is free but required, for catering numbers and since spaces are limited.

More information about this event…

The Development of Abortion Rights in a Changing Europe

When Sep 28, 2018
from 10:00 AM to 06:00 PM
Where LG19, Faculty of Law, University of Cambridge
Contact Name
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The provision of abortion services for women, including the extent to which one can consider abortion a “right”, is one of the foremost human rights issues facing citizens of the United Kingdom and Ireland today. This issue deserves the full engagement of our best legal minds. To this end, this conference entitled "The Development of Abortion Rights in a Changing Europe" will be entirely focused on the legal frameworks in place, their interaction with human rights law, and the potential of recent legal and political developments and litigation to change the law. 

The conference, organised in collaboration with the Cambridge Centre for Law, Medicine and Life Sciences, will explore what human rights law has to say on the issue of abortion in 2018. Consideration will be given to issues including the upcoming referendum on Ireland’s 8th Amendment, and the impact of Brexit on abortion law across the UK and Ireland. Discussion will not be limited to the legal framework in Ireland and Northern Ireland, although the issue is currently highly topical for those jurisdictions. Papers are welcome on any topic in the field of development of abortion rights for Europe mindful of the changes that are occurring. A list of themes to consider is included in our call for submissions. The deadline for abstract submissions is March 15th, and we welcome more submissions.  

Crucially, this will not be a propagandist or partisan rally - issues will be dealt with openly, conversation and debate will be sparked and hopefully both our audiences and speakers will come away having heard new and insightful perspectives. We will be accepting paper submissions from both “pro-choice” and “pro-life” lawyers and academics. 

We take this even-handed perspective as integral to the conference’s organisation. We do not want to live in an echo-chamber of opinions; such conditions are not conducive to expansive thought in any academic field.

Please contact the Conference Committee at abortionrightsconference@gmail.com with any questions, or to request a copy of the call for paper submissions for the conference.

Further information and  registration available here


Key information:

Date: 28th September 2018

Time: 10am - 6pm

Location: LG19, Faculty of Law, University of Cambridge. 

CeBIL Symposium 2018: Precision Medicine, Artificial Intelligence and the Law

When Sep 07, 2018
from 09:00 AM to 05:00 PM
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Black-box precision medicine is an exciting new frontier in health care diagnostics, harnessing the power of big data and artificial intelligence to examine newly available troves of health data, including genomic sequences, patient clinical care records, and the results of diagnostic tests.

This one-day symposium aims to tackle some of the challenging issues raised by black-box precision medicine, particularly for legal and regulatory frameworks, including:

  • What are the distinguishing features and added benefits of black-box medicine in comparison to traditional personalized medicine?
  • What are the legal hurdles to the further development of black-box medicine?
  • How does the IVD framework differ for black box medicine in the US and Europe?
  • How is the precision medicine industry (academic and commercial) responding to the regulatory and IP challenges?

 

Confirmed speakers include 

  • Dr Alberto Gutierrez (FDA 2009-2017)
  • Prof Glenn Cohen (Harvard)
  • Emeritus Prof Chris Lowe (Cambridge Academy of Therapeutic Sciences)
  • Prof Timo Minssen (Copenhagen)
  • Prof Mateo Aboy (Cambridge)
  • Dr John Liddicoat (Cambridge)
  • Dr Stuart Hogarth (Cambridge)
  • Dr Nicholson Price (Michigan)
  • Prof Jacob Sherkow (New York)

 

Date: Friday 7 September 2018,

Time: 9am-5pm (followed by networking reception)

Venue: Christ's College, Cambridge

Register: cebil-2018.eventbrite.co.uk

More information about this event…

Dr Erdos on "Going Global? The General Data Protection Regulation and Transborder Data Flow in an Interconnected World?

When Apr 11, 2018
from 03:30 PM to 04:00 PM
Where University of Hong Kong
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HK Symposium - Privacy

On Wednesday April 11th, Dr David Erdos will deliver a talk titled "Going Global? The General Data Protection Regulation and Transborder Data Flow in an Interconnected World"  at the University of Hong Kong.   This is part of a symposium on Privacy, Data Protection and Data-Sharing in Biomedical Research organized by HKU's Centre for Medical Ethics and Law.

Abstract:

The Snowdon revelations catapulted restrictions on the flow of personal data overseas into the very centre of the data protection debate and the General Data Protection Regulations sets out a much tougher regulatory approach here than was previously the norm in many EU Member States (including the UK).  Going forward, transfers to a new controller or processor based overseas will only be legitimate if certain strict conditions are met, such as a European Commission decision that the jurisdiction in question provides “adequate”/“essentially equivalent” protection or the appropriate use of standard contractual clauses.  It is nevertheless important to keep in mind that these rules are not ends in themselves but rather meant to be instrumental means to securing a high, yet also contextual, level of data protection.  In a ubiquitously connected world, this may necessitate some rethinking of what we mean by a “transfer” of personal data.  It will also require active work by data protection authorities to help craft solutions which safeguard data subjects whilst also enabling other positive goals to be fulfilled including satisfying “the legitimate expectations of society for an increase of knowledge” (GDPR, recital 113).

More information about the conference can be found here.

Dr Skopek on "What is Privacy? (What is Data Protection?)"

When Apr 11, 2018
from 02:15 PM to 02:45 PM
Where University of Hong Kong
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HK Symposium - Privacy

On Wednesday April 11th, Dr Jeff Skopek will deliver a talk on "What is Privacy? (What is Data Protection?)" at the University of Hong Kong.    This is part of symposium on Privacy, Data Protection and Data-Sharing in Biomedical Research organized by the Centre for Medical Ethics and Law.

 

Abstract:

For as long as privacy has been the focus of academic attention, it has been criticized as an ill-defined concept, and for as long as scholars have tried to clarify the nature of privacy, their definitions have been rejected as too broad, too narrow, or both. In light of this history, privacy scholars are increasingly concluding that a unified account of privacy is unattainable. Dr Skopek will argue that this conclusion is mistaken and arises from a basic category error, in which descriptive and normative theories of privacy are conflated. When privacy losses and privacy violations are instead differentiated and analyzed independently, it becomes clear that a unified account of privacy is attainable, but that privacy rights are limited in ways that have gone unrecognized. 

More information about the conference can be found here.

Dr Skopek on "The Ethics of Enhancement"

When Apr 11, 2018
from 11:10 AM to 11:40 AM
Where University of Hong Kong
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HK Symposium - EthicsOn

On Wednesday April 11th, Dr Jeff Skopek will deliver a talk on "The Ethics of Enhancement" at the University of Hong Kong.  This is part of symposium on Policy and Regulatory Responses to New Genomic and Reproductive Technologies organized by the Centre for Medical Ethics and Law.

Abstract:

It is helpful to differentiate between three categorically-different types of harms that might be caused by human enhancement. First, enhancement might cause harms to individuals, including physical injuries, coercion, and autonomy violations. Second, enhancement might cause societal harms, such as increased inequality, reductions in aggregate welfare, and the loss of public goods. Third, enhancement might cause harms to human values, including the values of labour, parental virtue, and solidary.  In this talk, I will identify and explore these different types of potential harms, clarifying the strengths and limits of the most common objections to human enhancement. 
 
More information about the conference can be found here.

Dr Skopek on "Translating Informed Consent"

When Apr 09, 2018
from 11:00 AM to 12:30 PM
Where Faculty of Medicine, University of Hong Kong
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On 9th April 2018, Dr Jeff Skopek (Deputy Director of LML) will deliver his talk "Translating Informed Consent" at the Faculty of Medicine at the University of Hong Kong.

Abstract:

While research involving human subjects once consisted primarily of research on people, advances in biobanking and big data have transformed the research landscape. Personal data and biospecimens are increasingly at the centre of research, giving rise to difficult questions about whether and how to apply legal and ethical principles that were originally developed to govern research on people. This talk will focus on the principle of informed consent and the challenges of translating the principle from one context to the other. It will explore challenges that arise around the individual's decision to participate, as well as those that emerge in the broader governance of research.

Further information can be found here.

Dr Liddell features as Panellist at Cambridge Science Festival Discussion Event on Genome Editing

When Mar 13, 2018
from 07:00 PM to 08:30 PM
Where Espresso Library, Cambridge.
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On March 13th 2018, Dr Kathy Liddell (LML Director) participated in "Genome editing: how far should we go?", a panel discussion event organised by the Babraham Institute as part of the Cambridge Science Festival.  

The genome editing technique CRISPR/Cas9 has revolutionised biological and medical research. In this panel discussion, the risks and opportunities of this technique were explored from the different perspectives of a scientist, a research funding organisation, a regulatory body, a bioethicist, a patient representative and a citizen representative.

The event sought to encourage wide and active discussion. A more participatory approach to research is a new strategy of the European Commission known as Open Science. In return, making research more participatory and transparent seeks to improve research quality, impact and competitiveness.

The Babraham Institute organised this event as a part of the European funded project ORION. ORION seeks to implement Open Science and Responsible Research and Innovation in research funding and performing organisations.

Professor I. Glenn Cohen: "Parenthood Disrupted (?)"

When Mar 09, 2018
from 05:15 PM to 07:30 PM
Where Faculty of Law
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parenthood-disrupted-poster

Further details:    

Time:  The lecture will begin promptly at 5:30pm. Pease arrive in a good time as we expect that the event will be well-attended.Doors will open at 5:00pm. The lecture will be followed by Q&A and a drinks reception.

Location:  Room LG17, Faculty of Law, University of Cambridge

Registration:  The event is free, but please register here

Parking and transportation:  There is limited on-site parking (contact lml@law.cam.ac.uk) and some metered on-street parking. The venue is on the route for the Uni 4 bus service, alight at West Road, CB3 (further information here). 

Questions Please email us at

   

This event is kindly sponsored by the Ver Heyden de Lancey Fund, and organised by the Centre for Law, Medicine and Life Sciences, in collaboration with Cambridge Family Law.

Dr Liddell to deliver keynote speech at international conference on Legal Perspectives on Synthetic Biology and Gene Editing

When Nov 20, 2017
from 12:30 PM to 01:00 PM
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On Monday 20th November, Dr Kathy Liddell (LML Director) will deliver a keynote speech at the upcoming 'Legal Perspectives on Synthetic Biology and Gene Editing' conference hosted by the Centre for Information and Innovation Law, University of Copenhagen. Dr Liddell will speak on the topic of 'IP Policies for Large Bioresources: the fiction, fantasy, and future of openness', a current research interest of the LML. 

More information about this event…

Dr Liddicoat to present at International Conference on 'Legal Perspectives on Synthetic Biology and Gene Editing'.

When Nov 20, 2017
from 10:30 AM to 11:45 AM
Where Centre for Information and Innovation Law, University of Copenhagen
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On Monday 20th November, Dr John Liddicoat will be presenting 'A deep dive into the regulatory soup of precision medicine: are new gene-based technologies drowning?' at an international conference on 'Legal Perspectives on Synthetic Biology and Gene Editing' at the University of Copenhagen's Centre for Information and Innovation Law. His presentation will feature as part of the panel 'IP and regulation in Gene editing and Synthetic Biology'.

More information about this event…

Dr McGrath to present ‘Private Law and the Challenge of AMR’ at CMEL Conference on Antimicrobial Resistance

When Nov 10, 2017
from 11:10 AM to 11:30 AM
Where Faculty of Law, The University of Hong Kong
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On 10th November 2017, LML Member Dr Colm McGrath will be presenting his paper ‘Private Law and the Challenge of AMR’ at the second day of a conference organised by our sister unit CMEL at the University of Hong Kong: ‘Tackling Antimicrobial Resistance: Meeting the Global Challenge of AMR’.

Dr McGrath's paper is part of the conference's third session: 'The Community Context', which will address specific situations in which AMR is already a grave and urgent threat (tuberculosis, malaria, MRSA and other resistant nosocomial infections), and examine accounts of current public health responses to the challenges of AMR for these specific situations, and consider recommendations for the future management of these conditions (including the incentivization of research, the development of new antibiotics and the prioritizing of resources to public health efforts at the control of these infections).

More information about this event…

Colm McGrath discusses the roots of German medical malpractice

When Oct 17, 2017
from 05:15 PM to 06:15 PM
Where Board Room, Faculty of History, University of Cambridge
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On 17th October, Colm McGrath is giving a seminar in Cambridge as part of the termly series organised by the Centre for English Legal History (CELH). The talk is titled ‘The roots of German medical malpractice’ and will examine the processes by which German law came to more closely scrutinise professional medical conduct, than has historically been the case in England.

More information about this seminar can be found here.

Compulsory Mental Health Treatment in Hong Kong: Which Way Forward?

When Aug 25, 2017 09:00 AM to
Aug 26, 2017 06:00 PM
Where University of Hong Kong
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Mental Health Conference HK 2

Image courtesy of Centre for Medical Ethics & Law, University of Hong Kong.

 

In Hong Kong, the Mental Health Ordinance (Cap136) has been the primary legislation tasked with the purpose of ensuring adequate mental health care as well as protecting patients’ rights. However, implementation of the Mental Health Ordinance has presented difficulties in practice, and variances in its implementation have sometimes led to legal dilemmas.

This two-day conference, organised in collaboration with LML Affiliate Dr Elizabeth Fistein, seeks to address some of these issues, beginning the process of developing a roadmap for reform in Hong Kong. Broad issues in compulsory mental health treatment will be explored from a comparative perspective, as well as how these issues manifest themselves in hospital and community mental health practice. The roundtable discussions will bring together the progress made across both days to put together suggestions for policy reform in Hong Kong.

The conference will be of interest to researchers, clinicians and legal practitioners who wish to gain a deeper understanding of the legal and ethical justifications for compulsory treatment, through a dynamic interaction with experts in mental health ethics and law from across the globe.

More information about the event can be found here.

Genetic Databases: Who is Liable, When, and For What?

When May 26, 2017
from 11:00 AM to 02:00 PM
Where Alison Richard Building, Sidgwick Site, Cambridge
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On Friday 26th May 2017, the Centre for Law, Medicine and Life Sciences (LML) will be hosting a Roundtable to discuss the topic of 'Legal Liability for Genetic Databases'.

What sort of harm can be caused by genetic databases, who is legally responsible, and in what circumstances?

The recent US case, Willams v Quest/Athena, provides an interesting case study. A parent is currently in the process of suing various people associated with a genetic sequence database (eg the database managers and the treating clinician) for the wrongful death of her son. She alleges that the defendants failed to recognise that what they had recorded as a variant of unknown significance (VUS) was actually known to be a significant disease-causing variant, but the database had not been updated to reflect this. The negligent classification resulted in a late diagnosis of Dravet Syndrome; her son's symptoms worsened and he died.

(Due to space constraints, this Event is by invitation only.)

The event will open with a presentation by Prof. Bartha Knoppers, followed by a discussion session. Five core questions will be  considered during the Roundtable:

1.     In what circumstances might liability arise in the UK for harm caused by genetic databases? We will discuss this from the perspective of database operators, managers, and clinicians.

2.     What additional complexity arises with multinational databases?

3.     What specific issues arise for scientists and clinicians in practice?

4.     What steps would help minimise or appropriately manage liability?

5.     Are there any novel legal questions warranting further academic legal research?

Gene Editing: From Innovative Science to Effective Policy

When May 25, 2017
from 12:00 PM to 05:00 PM
Where The Møller Centre, Cambridge
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The pace of scientific innovation in and around the life sciences has never been faster, and the implications of many of these innovations pose significant issues for policy-makers, especially for applications relating to human health. Join leading international experts as they explore how we can balance an accurate understanding of complex biomedical science against ethical, legal and social issues to develop robust and effective policy.

For tickets, go to:  https://www.eventbrite.co.uk/e/gene-editing-from-innovative-science-to-effective-policy-tickets-31926904230?aff=Newsletter3

 

Keynote Speakers:

Prof. Bartha Knoppers, Director, Centre of Genomics and Policy, McGill
University
Dr Eric Meslin, President and CEO, Council of Canadian Academies

Supported by speakers from the University of Cambridge Centre for Law,
Medicine and Policy and the Department of History and Philosophy of
Science, including Dr. Rumiana Yotova (LML), and Prof. Tim Lewens (Cambridge HPS).

 

The Right to Enjoy the Benefits of Science: Sentiment or Law?

When May 24, 2017
from 04:30 PM to 07:00 PM
Where Lauterpacht Centre for International Law, University of Cambridge
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Abstract

This talk will focus on the right to enjoy the benefits of scientific progress and its applications, which is one of the least studied and discussed human rights despite being set out in both the 1948 Universal Declaration on Human Rights and later in the International Covenant on Economic, Social and Cultural Rights. Indeed, it is no surprise that the right to benefit from science was compared by William Schabas to the 'sleeping beauty' of human rights. In the current time of globalization, characterized by the rapid advancement of science and its technological applications, as well as by the increased flows of scientific and other data, however, there is a growing need to revisit if not awaken the right of everyone to enjoy the benefits of science. We will address this need by assessing what are the legal status, normative content and recent trends in the development of the right to benefit from science. We will then see whether the right has any implications for the access to ‘big data’ in the field of health and whether it poses any requirements in this respect. Finally, we will draw conclusions as to the potential and limitations of the right in addressing the scientific and technological challenges of big data in the future.

About the Speakers

Professor Bartha Knoppers studied law at the Cambridge Law Faculty (Trinity College) and is now an international authority on the legal and ethical issues surrounding genomic technology. A list of Professor Knoppers’ publications can be found here. Amongst other distinctions she is the Director of the Centre of Genomics and Policy, McGill University; the Canada Research Chair in Law and Medicine 2001; and the holder of Chaire d’excellence Pierre Fermat (France) (2006-2008).

Dr. Rumiana Yotova is College Lecturer in Law, and Director of Studies at Lucy Cavendish College, University of Cambridge. A list of Dr. Yotova's publications can be found here. Dr. Yotova has also been Door Tenant at Thomas More Chambers since January 2017.

CSaP Fourteenth Policy Leaders Fellows' Roundtable

When May 12, 2017
from 04:00 PM to 06:45 PM
Where Small Drawing Room, Master's Lodge, Trinity College, Cambridge
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Kathy Liddell, Director of the LML, has been invited to participate in 
the fourteenth Policy Leaders Fellowship Roundtable organised by the 
Centre for Science and Policy which will take place at Trinity College 
Cambridge on 12 May 2017, chaired by Lord Wilson of Dinton, former UK 
Cabinet Secretary.

The subject for discussion on 12 May will be “advances in genetic 
technologies”. 

Dr Yotova to take part in Research Visit to McGill University

When Mar 20, 2017 12:00 AM to
Apr 14, 2017 12:00 PM
Where McGill University, Montreal
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From 20 March 2017 - 14 April 2016, LML member Dr. Rumiana Yotova will be conducting a research visit to McGill University to work on a collaborative project with LML's Distinguished Visiting Research Professor, Prof. Bartha Knoppers. The project examines the right to benefit from science under international and comparative law. 

Dr Skopek speaks at Academia Sinica, Taiwan

When Apr 12, 2017
from 03:00 PM to 06:00 PM
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Dr Skopek will present his work on privacy and big data during a visit to Academia Sinica, Taiwan, where he will also take a tour of the Taiwan Biobank and meet with several related research groups. 

LML and partners hold conference on "Who Owns Your Body?"

When Apr 06, 2017 09:00 AM to
Apr 07, 2017 06:00 PM
Where University of Hong Kong
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LML is collaborating with the Centre for Medical Ethics and Law (Hong Kong University), PHG Foundation (Cambridge), and Centre of Genomics and Policy (McGill) to hold a conference on  'Who Owns Your Body?' at the University of Hong Kong on 6th-7th April 2017.

Two members of the LML will be presenting papers at the HKU conference.   Dr Skopek will present 'Should Anonymization Extinguish Our Rights?'.  Colm McGrath will present 'Compensation and Property in the Body'.

More information about this event can be found here.

 

Mr Colm McGrath to present paper "Compensation and property in the body" at HKU Conference

When Apr 07, 2017
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On 7 April 2017, Colm McGrath presented his paper 'Compensation and property in the body' at 'Who Owns Your Body?', a conference organised by the Centre for Medical Ethics and Law at the University of Hong Kong and co-sponsored by LML.

This paper considers the tension that has emerged between the compensatory regime captured in the Consumer Protection Act 1987 and the tort of negligence. Although the former is intended to be easier for an aggrieved claimant to satisfy in UK law, recent case law suggests that this is no longer the case where the claimant is a patient who has suffered loss as a result of transplant or transfusion in the course of medical treatment. This paper explores these emerging problems and questions whether a strict division between patients in these various contexts is sustainable.

More information about this conference can be found here.